Here is the journaling because i know its hard to read.
I hope one day that your stubborn personality will come in handy and you will “choose” life. Right now at 5 you are struggling with the fact that you have Cystic Fibrosis and your siblings don’t. You want to know why and how – life just isn’t fair. Every time we have to do treatments it’s a fight – you scream, yell, cry – want to know why you have to wear the vest and feel like it’s the end of the world. I feel like a horrible mom – I finally stooped where I said I never would and told you that if you didn’t do your treatment you would live in the hospital for a very long time and that you could die………I really had good intentions – I only wanted you to understand that I never want that to happen and that I want you to be as strong and healthy as you can so that we can be together as long as possible. I know one day – your stubbornness will help you get through the challenges in life and that you won’t let it get you down – hopefully right now its just a phase – and its my job as your mom to just love you while you go through it.
Okay enough of that - since school has started I was really dreading the early mornings with treatment and for the last 2 days he's done really well - so keep your fingers crossed! Thanks for stopping by!