Friday, August 15, 2008
scrapping for CF
well i just surfing a few blogs and came accoss a link on Emilie Ahern's Blog for a website called Scrapping for CF. I about hit the floor when i saw it - as you know my little Ethan suffers from CF and am feeling SUPER DUPER guilty for not pulling together my anual Scrapping event to raise money for CF this year - i kinda just let it go and it should be taking place next month - its way to late for that now - but i can try to get my good family and friends to go check out this website - they are currently holding classes that you pay for and ALL of the proceeds go to CF. There are 5 classes - all taught by scrappers in Austrailia - and even if classes aren't your thing - it would be worth it. Such a great cause and we need so much more support than we have right now - more people need to know what CF is about and what it can do to the ones who have it. They have a page on the site where you can read a few stories of families that deal with it and one who has lost a daughter from it. I know we have come so far - even since Ethan was born - the median age of survival has gone up 1 year each year since he was born. So right now it is 37 - that is amazing - but NOT good enough for me - I want to out live him - I want him to get married and have a family and go to college and get a great job and LOVE LIFE - not suffer or be in pain. My sweet friend Carey who also has a son with CF just lost a close friend to CF recently (hugs to you) - and i havn't been able to stop thinking about it since then - so i guess i need to step up and make sure i'm doing my part so Ethan can live a healthy happy LONG life. This is just small - You can get ALL 5 classes for $28.00 - or each class is $10.00 i think. Go check out the site and see if its something your interested in - the stories will touch your hearts - even if you dont know me personally or know my story. I will get off my soap box now - and I better start getting my ideas together for another crop - if your in Utah and interested in helping in anyway - let me know. This will be supporting the CF foundation in Austrailia - but it all helps - now matter where it is.