is a tough disease. Most days are good - but there are some that it's all i think about - what his future will be like - what will we do when something goes wrong. We have been so fortunate thus far to have hardly ANY problems with his CF. We just had a clinic visit a few weeks ago and got the call a few days ago that everything came back normal, blood work and x-rays were all clear, another 3 months under our belt.
This is one of them - it's the story of a 23 year old actress who did a documentary about Cystic Fibrosis (65 red roses) - she past away in March. She had a lung transplant and her life deteriorated quickly because her body was rejecting them. She has some very inspiring stories on her blog and there are some clips from the movie.
65 Red Roses.
So then i have to move on to more inspiring stories - this man who is living with Cystic Fibrosis and is now 65 - WoW! How cool is that!
And Dean's cute cousin Kara who has Cystic Fibrosis and her husband Jordan - are finally able to adopt a baby - i'm SO happy for them.
One of my very best friends who i've met through this process and has a son with CF always seems to make me feel better too - Love ya Carey!
Okay - i'm ready to get off my soapbox - if you've made it this far - thanks for listening. And if your interested in donating to a great cause and in making CF stand for cure found - our annual great strides walk is coming up a week from this Saturday on the 22nd. If you donate through that button it will go directly to Team Ethan!!